Happy 1st birthday to the fantasic SWAN UK , thanks for all the support and friends you have brought to me , your all fantastic x

What a lonely world it could be

I feel so lucky to have found the amazing SWAN UK group and my lovely SWAN SISTERS  they are there for me come rain or shine there is always someone there to offer support , to moan with , to laugh with and to celebrate even the smallest things with .
Without SWAN i know my life could be a very lonely place knowing there is someone who understands really brigthens my day .

SWAN sisters

OK so at present I'm full of smiles not because things in life are great not because we've had answers that's all still not changed its because of a very special group of ladies these ladies i like to call my SWAN sisters i suggested a group of us got together and did a sponsored weight loss to try and help raise money for the fab SWAN UK we spent the evening all chatting over facebook and our smiles just got bigger and bigger i love being part of this swan family it doesn't matter if i want to cry ,shout , giggle and laugh or sit in the corner rocking back and forth theres always someone there to hold my hand don't get me wrong these new found friends don't replace my other friends how can they we've been through to much together , my new found friends understand in a different way to others as they live the same life as me so today i want to send extra big hugs to my friends i call my SWAN sisters thanks for picking me up on a low day

A lovely day out

On Sunday we decided to pack the 5 kids into the car and make the most of the last day of the Easter break my Daddy Star wanted to go to a little coastal village called Beer so off we went it was a beautiful day the kids and daddy star went climbing around by the rock pool whilst me and Tommy sat and watched the beautiful view on the very stony beach we sat and cuddled and took lots of photos of the views today Tommy wasn't bothered he couldn't join the others in there fun he was very content on cuddling up with mummy and pointing out the boats and taking photos today was lovely no crying in frustration at the fact his legs would not carry him across the stones to the rest of the family today was what id call a perfect day our life Ive wrote this blog as part of the define normal challenge  http://www.justbringthechocolate.com/define-normal/

Back to normale

We've had a great Easter Tommy loved having all his brothers and sisters home he only had one crash out day during the whole time which was good , he enjoying following them round the woods to find his eggs during a family egg hunt and seeing the animals on the farm its was smiles the whole break for all of us but then yesterday the kids went back to school it was as if he was saving it because yesterday the coughing started today his chest is bubbling and hes so weak he cant sit up so back to normal we are again but its not going to get me down as Ive such lovely memories from our Easter break we spent a lovely 2 weeks as a family which was needed by all sometime out as a family with lovely memories shared

Alovely day on the farm

Yesterday after a busy week in the garden we decided to take the kids to the  farm Tommy enjoyed himself and smiled from ear to ear signing each animal whilst making the animals noises pigs are def his favourite whilst he thought the ducks were just there for him to chase just like he does with ours from home was so nice to see him enjoying himself

Why is everything a fight ?

Feeling very cheesed off tonight as i write this blog we went to look around a special school today which was lovely whilst we were there we saw the schools on site physio who was lovely within 5 minutes of watching Tommy she said he would get lost at mainstream school (my worse fear where school is concerned is confirmed) she also commented that he should have support on his ankles due to his hyper mobility and muscle weakness another of my bad feelings confirmed we were told in Sept 2011 he ankles were strong enough to manage without support boots now we've always felt this was not right and now today we are told are feelings were right so why is it I'm now going to have to start fighting for more support yet again i was told the reason why today and that's because all people see is a happy little boy who is now able to walk so is now shoved to the end of the pile she said its not till people have spent more than hour with him and watched him closely they realise things really arnt right argggggghhhhhh i just feel like I'm banging my head against a wall and that my son is not as important to others I'm so tired of fighting whens it going to end