our normal life

So you ask me how a normal day begins for us well Ive had to think long and hard about this as I'm so set in our morning pattern i could do it in my self it all begins at 6pm when 2 of my stars wake up this is normally followed by my Tommy wakening up calling for me so i go up and carry him down we then sit on the sofa for a ten minute cuddle and i massage him feet ankles and legs as he waves them about at me indicating they are causing his problems what we don't know as he can not tell us yet every morning i hope or the answer then when hes settled its time for breakfast and for morning meds heart meds , thyroid meds and now his new meds for the dribble after breakfast its time to get dressed and time to fit Tommy's hearing aid depending on the sort of the we have ahead and also what type of day Tommy is having it could be a my muscles are weak snuggle on the sofa day or it could be a full of mischief get in to everything day or a my eyes are bad  (nystagmus) so I'm going to have major sensory issues to us taking each day as it comes is normal for us we never no from one day to the next or even hour to hour how Tommy will react or what his needs maybe , also fitting in all his many appointments is a step away from ordinary life they same as his changing bag is far from normal instead of the normal nappies etc we have it full of meds hearing aid battery's blood testing kits , hospital phone numbers extra dummy's and his snuggle blanket in case of a sensory flip out for us its normal life we don't see or think of it as different  but when we think of a normal 2 and a half year old and there daily needs we see a big difference but this is our normal life one we've fallen into with out realising or thinking its second nature  to be giving Tommy his heart meds 3 times a day every meal the bottles put on the table almost like the salt and pepper pots  its just part of our life OUR NORMAL  TO US LIFE