xmas stars

xmas stars

Saturday, 21 January 2012

A step backwards

So as you all now my little star has been doing so well the past few months but in the last week hes slipped back down hill it began with his nystagmus being worst followed by his balance he went from being able to walk 8/9 steps before fallen he could only manage 4/5 then it went to the moaning and crying in his sleep and being unable to roll himself over in his cot to Fri when he could walk at all he spent the whole day flopped on the sofa watch telly and wouldn't even eat a biscuit for everyone who knows my star hes a complete biscuit bin and never refuses them he had a restless night Fri and it took a few hours before his legs could carry him but today (sat) he had much more energy we went out for a lovely family walk where Tommy sat in his wheelchair and had a smile on his face the whole time.
Sadly the way Tommy has been the past few days is very common for us as its happened many times before its just sad to see him take a step back but also good to know that with a lot of rest and TLC no matter how long hes down he will get back up again  

3 comments:

  1. sorry to hear that your little star hasn't been very good. At least you know that this has happened before and he will improve. xx

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  2. I'm so glad he's up again.

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  3. I'm glad he's back and up again but it is horrible to see them regress and get so poorly.

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