xmas stars

xmas stars

Friday, 23 March 2012

Why is everything a fight ?

Feeling very cheesed off tonight as i write this blog we went to look around a special school today which was lovely whilst we were there we saw the schools on site physio who was lovely within 5 minutes of watching Tommy she said he would get lost at mainstream school (my worse fear where school is concerned is confirmed) she also commented that he should have support on his ankles due to his hyper mobility and muscle weakness another of my bad feelings confirmed we were told in Sept 2011 he ankles were strong enough to manage without support boots now we've always felt this was not right and now today we are told are feelings were right so why is it I'm now going to have to start fighting for more support yet again i was told the reason why today and that's because all people see is a happy little boy who is now able to walk so is now shoved to the end of the pile she said its not till people have spent more than hour with him and watched him closely they realise things really arnt right argggggghhhhhh i just feel like I'm banging my head against a wall and that my son is not as important to others I'm so tired of fighting whens it going to end

1 comment:

  1. I'm sorry for your frustration. I say it's not a fight - it's a war against the system. You won one battle, but you never know how many there are waiting for you.
    It seems this is the only way for us parents to start the state moving.